I read about this great idea to help people understand how Julian
feels each day, so I would like to present a challenge to you all!
I
would like you to take a straw and breathe through it for a few minutes.
You might think, oh that's easy! But it's not. Keep going. Little
bit more. Little bit more. Are you starting to struggle? Are you
breathless, do you feel an ache starting in your chest, even your
stomach?
This is how Julian, and other PH, PAH & IPAH sufferers
feel. Every. Single. Day. No break.
Now, take the straw out of your
mouth. Feel a bit of relief? Unfortunately, Julian never gets to feel
that, never gets a break from breathlessness. It's just a matter of
how breathless he is, not if he is or isn't.
Let me know how you go!