I read about this great idea to help people understand how Julian
feels each day, so I would like to present a challenge to you all!
I
would like you to take a straw and breathe through it for a few minutes.
You might think, oh that's easy! But it's not. Keep going. Little
bit more. Little bit more. Are you starting to struggle? Are you
breathless, do you feel an ache starting in your chest, even your
stomach?
This is how Julian, and other PH, PAH & IPAH sufferers
feel. Every. Single. Day. No break.
Now, take the straw out of your
mouth. Feel a bit of relief? Unfortunately, Julian never gets to feel
that, never gets a break from breathlessness. It's just a matter of
how breathless he is, not if he is or isn't.
Let me know how you go!
I decided to create 'Saving Jules' in the hopes that other parents will chance upon my blog and discover others on the same journey they are, with a diagnosis of Idiopathic Pulmonary Arterial Hypertension. Yes, we face every day with the knowledge that this may be Julian's last, but what a journey we are on with him!
Showing posts with label straw challenge. Show all posts
Showing posts with label straw challenge. Show all posts
Friday, 9 October 2015
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