I decided to create 'Saving Jules' in the hopes that other parents will chance upon my blog and discover others on the same journey they are, with a diagnosis of Idiopathic Pulmonary Arterial Hypertension. Yes, we face every day with the knowledge that this may be Julian's last, but what a journey we are on with him!
Friday, 2 August 2013
I look forward to the silly things he’ll do
know this sounds a little silly, and a lot of parents dread the phone calls
from the school letting them know their child has run into a pole, jumped off
the slippery slide, or fell out of a tree they weren’t supposed to be climbing, but I'm really looking forward to silly things Julian is likely to do as a pre-teen!
the past couple of weeks, we’ve had 2 phone calls from the school that went a
little something like this, “Hi Nigel/Coleen!Don’t worry, Julian’s fine, but.. .”They’ve been greeted with that parental groan we all know so well, and
along with the mild annoyance I’ve felt at his silliness, I’ve also been
pleased at the same time.When you’re
told that you will outlive your own son, you start to regret the fact that
he’ll likely never fall off the monkey bars and break his arm – not that that’s
the good part! – and then feel the puffed up self-importance that all kids feel
when there’s a rush by friends to sign the cast.There will be no war stories told over the
doctors head while he stitches a leg or hand, no scars to share and brag about
with his mates.These are the injuries
that no parents really want for their kids – who wants to see their kids in
that much pain? – but it’s something that I always had a mild, somewhat guilty,
hope for him to experience.
first misdemeanour was the week they all went back to school, and involved putting his head together with a mate and deciding
that having said friend push him down the hill on the oval in his wheelchair
would be a break from the boredom of high school!Let’s just say a clean-up of the wheelchair
was in order after that one . . .
just a week ago we got a call to let us know about a magic trick gone
awry!Long story short, it involved
glue, a leather neck band and what looked like carpet burn on his neck . . . I’ll
leave your imaginations to fill in the rest!
may have been annoyed by his silliness, but boy oh boy, were we pleased he got
to have those experiences too!