Chewing Gum and Duct Tape

I learned something about myself recently.  It wasn’t pointed out to me, just a realisation that came upon me suddenly while I was clicking my way through Pinterest.

I’ve been hiding myself away from the reality of our life with Julian’s condition.

It is why I have stayed away from blogging.  It is why I have stopped any form of research, and it is why I stopped looking forward to getting together with the other families at the Pulmonary Hypertension clinic every 3 months.

I may seem fine on the outside, but if you don’t see me here or on the Saving Jules Facebook page, it may be because the chewing gum and duct tape that are holding me together inside is coming loose.

Introducing Julian!!!

Well, we’ve had a pretty crappy year this year so far.  The last few months we’ve spent packing and moving, which was not a lot of fun for any of us.  On the day of my last post (in fact only a matter of a few hours later) my cousin passed away unexpectedly, and I lost a very good friend to Pulmonary Hypertension a few weeks later.  My Nana’s health started to deteriorate quickly after the loss of my cousin and in March she sadly passed away at the wonderful age of 90-almost-91.

This morning I woke up with a strong feeling that I really needed to get back into the swing of things with Saving Jules and today I really wanted to introduce you to Julian himself, and the kind of person he is.

He loves to read.

With his favourite author, John Flanagan

Kicking it back with a book

 

He's dramatic.

Oh, the humanity!

 He’s artistic.

Fighting boredom at a clinic

He’s loving and affectionate.

Cuddles with Omar

A new cousin

  He’s a risk tasker.

Climbing a Pandanus Tree at Fingal Head

 

An Essex-Lopresti fracture

 He loves to make people laugh.

          

 

 

And best of all, he’s ours.

With his Dad, Nigel

 

With his younger brothers and sister

Julian, Ayan, Ella-Shae & Boey

Julian & I