Thursday, 26 September 2013
Day 4 with an Event Recorder
Why is it that up until the point you actually have tests done, the problem that was presenting itself would happen on a daily basis suddenly slows down and you’re lucky to have just one present itself in a week??? Grrrr.
In between Julian’s last two Pulmonary Hypertension Clinics he started to get almost daily palpitations, and they were pretty random in occurrence. Under exertion, at rest, it didn’t really matter what he was doing, all of a sudden you could see his t-shirt moving in time with his rapidly beating heart and he would go pale and blue all at the same time.
It was enough to concern his specialists and Dr. W referred Julian to have a 24 hour Halter Monitor and an Event Recorder for a week. He has red splotches all over his chest and on his side from the stickers they use (it’s getting harder and harder to find a ‘clear’ spot on his chest!). Needless to say, we’re slathering them with Medi-Quatro several times a day to get them to heal. I know he needs to have this done, but it’s so hard to watch him desperately try not to rip them off when they start to itch.
So far, he’s managed to catch two. One while he was playing soccer with his younger brother and one while we were lazing on the couch last night, catching up on all the missed ‘Person of Interest’ – we’ve got about 14 more episodes to watch now!
Dr. W granted my rather cheeky request to attempt to bring an episode on – in fact, the grin on his face (while the other 8 people in the room looked at me in mild horror) when he said “Do you think you can? Knock yourself out” showed me how well he has come to know me over the past nine years! I haven’t tried it yet; I have until Monday. Julian’s already started peeking around corners and looking over his shoulder, waiting for when I do . . . if I do. I probably won’t. Shhhh, don’t tell him that though.