I decided to create 'Saving Jules' in the hopes that other parents will chance upon my blog and discover others on the same journey they are, with a diagnosis of Idiopathic Pulmonary Arterial Hypertension. Yes, we face every day with the knowledge that this may be Julian's last, but what a journey we are on with him!
Tuesday, 6 January 2015
A trip to the new hospital!
We were at our
neighbours son’s 7th birthday party last Sunday morning when my 11
year old came up to me and told me “Mum, Julian’s not feeling well.”
I looked over to the
swings – where all good teenagers and pre-teens go to play at a playground! –
to see him slumped over one of the swings on his stomach with his forehead
resting on the ground.
When I got to him and
helped him to stand he said that he was having chest pains, so I walked him
over to the picnic tables and helped him to sit down.He flat out begged me not to call an
ambulance – he didn’t want to frighten the little kids at the party – so I kept
a close eye on him for a while.
Thank you Fairy Raine!
He rested for a bit,
then we did a slow treasure hunt and he had his face painted by a lovely lady
called “Fairy Raine” who went along brilliantly with my
dare to have his face painted like a Pirate Princess (we were at a Pirate Party
to, after all) – he got $10 out of it too!By the way, I can’t recommend her enough.She was absolutely brilliant, related
fantastically to all the kids, and my own 4 thought she was fantastic.
So, long story even
longer.He tried to get comfy on the
picnic bench, slipped, bent his finger back and promptly sat on it.Arrrggghhhh!It swelled up like a bloody balloon, and we toddled off to the local
Ambulance station to see if they thought it was broken or not.No one was there so Will and I made the
decision that I would take him to Robina Hospital ‘just in case’.He is on Warfarin, so our worry wasn’t just
that it was broken, but may be bleeding in the joint.
Waiting for results . . .
When we got to Robina
Hospital, they took us straight through once they heard how he had injured his
finger.He was hooked up to an ECG,
bloods taken, xrays done and they were in constant contact with the Cardiac
Fellow at the Lady Cilento Children’s Hospital.
HUGE tellies in the ED at Lady Cilento
A few hours later, he was transferred to the new Lady Cilento Children’s
Hospital where he spent the night, and then spent Monday having tests done. The new hospital is great, I just wish we hadn't had to see it so soon!
HUGE rooms too!
Nothing was found, and
his results were all almost identical to the results from the Pulmonary Hypertension
clinic in November.The doctors are of
the opinion that he just did too much.
So, now to figure out
how to keep a teenager quiet for the next few days . . .